Gianna"GiGi" Rae Amereno
Gianna Rae was born June 10, 2006 she is a beautiful sweet little angel. Gianna ( GiGi as she is called ) was diagnosed with Spinal Muscular Atrophy (SMA ) but this is not who GiGi is, She will not be defined by this disorder, So it is our wish that all who view this website will know a little bit about our sweet child. At two years old now she is blossoming. She is growing in leaps and bounds and everyday is a new challenge. She is discovering her own world and although it is very different than ours, with obstacles that we can’t imagine, she is a very happy and well adjusted two year old. Gianna has her own little personality and a very strong will. She lets you know what she likes and dislikes. And as a true female her shoe fetish has started! You will not see her wearing brown orthopedic shoes, No, she likes the pink suede ones with flowers, or her black patent leather boots with animal print fur. And you better make a fuss over them when you see her wearing them. GiGi loves chocolate, anything chocolate, chocolate candy kisses, chocolate cookies, and chocolate ice cream; don’t even try giving her vanilla with rainbow sprinkles. Yes, Gianna is a true girly girl, shoes and chocolate what could be better! Her smile and those eyes of hers light up everyone’s heart. We believe that a cure for GiGi is coming. We have been told by her doctors that a cure is close. She may not walk now but someday we believe she will. So we ask you not to feel sorry for her, but for your prayers for her. We ask that if you are viewing this site you say a prayer for Gianna, for her health, and for a cure, for her and all children that are afflicted with SMA. We also want to thank each and everyone of you who have donated towards Gigi's medical fund, it is VERY much appreciated!!
Thank you,
Vic and Krista Amereno
Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. It is a relatively common "rare disorder": approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers. 
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